Friday, December 5, 2014

Scan Results

We got the scan results on December 2nd.  It wasn't what we wanted to hear.

The scan looked about the same as the one done at the half way point.  Except one area in his abdomen looked a little worse.

The answer on what type of B Cell lymphoma we are dealing with in addition to the follicular lymphoma, went unanswered, mainly because they haven't checked.  They don't KNOW what type of B cell, other than an "aggressive lymphoma".

The options given  were to be seen at MD Anderson in Houston, and see a specialist.  This was beyond the realm of ability for our general oncologist to handle. He has repeatedly said this is a difficult case.

2nd and 3rd options were to do maintanence chemo, for an undetermined amount of time, but the chances of any change was slim.

4th option was to do nothing, which wasn't an option.

So, as of now, we are set up to see a Lymphoma Specialist at MD Anderson on the 15th.  It's a week later than the doc wanted, but it's the soonest we could get in.   There's no guarantee the insurance paperwork will be done by then, we'll have to keep an eye on that and make sure things are pushed through.

 From what I've been told, we'll be there for about a week or so.  No more than 7 days, so at least we'll be back home in time for Christmas.

The game plan right now, is a battery of tests, which may include another bone marrow test.  That will be needed if he is eligible for a stem cell transplant.  I believe that is the direction this is all headed.

So, we're back in the wait and see mode. Waiting for paperwork from the insurance to make sure we can keep the appointment, and then wait and see what the test results show.

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